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Patient confidentiality was preserved and the anonymity of all patient data was safeguarded throughout the study.
The quality of data was safeguarded by using experienced interviewers, assuring the confidentiality and privacy of respondents, and by asking informed consent and permission to tape interviews and focus group discussions.
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"Citizens have a right to know how their data is safeguarded.
The patients' private information was safeguarded effectively.
The privacy of the collected data was laid down in privacy regulations, by which ethical consent was safeguarded.
"However, it is vital that the sector considers fully how data and analysis is safeguarded.
"This is an unfortunate but perfectly cautionary tale of not only how we should look more carefully at protecting data after it is collected," says Lee Tien, a senior staff lawyer at the Electronic Frontier Foundation, a digital rights group in San Francisco, "but also how the data is to be safeguarded before we collect it to make sure it isn't used improperly or disclosed accidentally".
The nodes participating in data exchange should be safeguarded by trust and reputation mechanisms or else they could be attacked which might end up in unnecessary resource consumption of the entire mobile network.
Collected data from patients will be safeguarded with specific serial numbers without any personally identifiable information so that nobody will be able to recognise the patients except a security manager who has a code table.
Collection of data and questionnaires will be safeguarded by the trial coordinator.
The investigation had been prompted by concerns raised by the health select committee in February, where MPs had been unconvinced by the arguments put forward by the Health and Social Care Information Centre, the newly created central database for health data, that patient privacy had been safeguarded.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com