Obvious solutions include more research on statistical and behavioral fixes for irreproducibility, activism for policy changes, and demanding more pre-registration and data sharing from grantees.
More recently, one of us (NP again) was involved in another dispute about data sharing, from the other side.
Patients could authorize data sharing from their PCHR with collaborating clinicians to foster care coordination and/or with public health authorities to support surveillance and response.
In the future, Phenobase can be expanded to incorporate special databases containing phenotypic and genomic data of real patients [ 49, 50], thus enabling encrypted on-line data sharing from consenting individuals.
Secondly, the type of data shared ranges from higher to lower information density from time series data (e.g., an fMRI data set), to contrast or connectivity maps, to coordinates and peaks (e.g., tables in a journal article).
You can choose not to have such data shared with the Guardian from these sources by logging into your account and changing the settings in the privacy section.
Difficulties may arise where archived data are used or where data are shared from studies taking place within a purely academic context.
cMadlen Davies, 'Patients to be given "veto" over their data being shared from GP records' pulsetoday (online), 26 April 2013.
The primary motivation for data sharing stems from the desire to protect national benefits and to prevent upstream countries from overexploiting the shared water resources.
It is within this broader context that we are interested in the ways in which emerging data sharing platforms are reconfiguring the data sharing experience from different perspectives.
