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Privacy groups can therefore play an important role in protecting consumers by taking independent action against companies that fail to protect our data protection rights".
"European citizens care deeply about protecting their privacy and data protection rights," Ms. Reding said in a separate statement.
Protecting users in these markets also requires that consumer rights and data protection rights are effectively enforced," the report notes. .
Protest groups are on the case, citing privacy laws and data protection rights.
"To be effective, data protection rights need to actually be enforced".
In the US, the first amendment means that freedom of speech and publication trump data protection rights, which are minimal.
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In Graham's view, government must get the basics of data protection right before moving to ambitious projects such as 'mydata', or sharing electronic health records.
This institutional imbalance – the person asserting a data protection right has a presumptive ally and audience in the DPA, the person asserting a free expression right has neither – is compounded by the basic mission and function of most DPAs.
Nonetheless, the GDPR tilts the playing field powerfully in favor of privacy rights – and incentivizes widespread deletion of online expression even in cases where no privacy or data protection right is really infringed.
Besides, the respondents did neither mention (potential) distributional issues regarding personalized preventive measures nor did they allude to concerns of data protection, right to know/not to know or potential (genetic) discrimination regarding personalized therapeutic measures.
A potential reason for this might be the challenge of evaluating interventions in a scientifically sound manner in companies which might be unwilling to engage in such research or pose restrictions due to data-protection rights.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com