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But the underlying issue is the future of consumer data property rights — the question of who actually owns the information generated by a person who uses a digital device and whether using that property without explicit authorization constitutes trespassing.
HIPAA grants individuals a degree of control over their data that is strikingly similar to what they would enjoy if they actually owned their data: property rights also sometimes flip to liability-rule protection, as when buildings are condemned for public safety or to build a highway.
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Last, we developed an overview of each biobank that included summaries of ELSI-relevant topics, such as policies and practices related to informed consent, ensuring contributors' confidentiality and privacy, ownership of specimens and data, and intellectual property rights.
Additionally, fairness in international collaboration needs to be ensured, with researchers having equal access to data, and intellectual property rights adequately addressed.
These include regulations about shipment of clinical specimens and biological materials, data sharing, intellectual property rights, health research as a part of the national health system, transfer of technology, research results and publication, and community involvement, as well as more recently the requirement to register clinical research.
Extensive concerns over regulation and legal compliance violations were indicated by the participants in Stage 1. Participants also registered concerns about the loss or misuse of data by others, SLA problems, data ownership and intellectual property rights.
This analytical complexity is compounded against the backdrop of increasingly global data businesses, as intellectual property rights are primarily national rights so the rules and requirements will vary not only from right to right but from country to country.
It also wants EU data retention and intellectual property rights directives to be repealed.
However, Cloud Computing also moves functions and responsibilities away from local ownership and management to a third-party provided service, and brings with it a set of associated legal issues, such as data protection, licensing, intellectual property rights and the need to comply to necessary regulation.
These results confirmed that either the β-glucosidases did not adsorb to any of the tested components in pretreated biomasses or they adsorbed to pretreated wheat straw and lignin from pretreated wheat straw (unpublished data due to intellectual property rights).
Only a few states recognize patient property rights in data, but HIPAA constrains data sharing in a surprisingly similar way.
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