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Data safe storage and management; research; data sharing; third-party services (for-profit) on data made accessible by members.
At this point Royal Free patients can opt out of having their data made accessible under the forthcoming FHIR API — which DeepMind says it expects to launch early next year — although Suleyman notes those decisions are made by the Trust, as the data controller, and says the Royal Free could decide to remove the opt out in the future if the API ends up being considered a core system for them.
The only donor-specific data made accessible to us were gender, chronological age, BMI and the skin area from which the cells were isolated.
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All sequence data was made accessible from the NIH next generation sequence read archive (SRA) data base (http://www.ncbi.nlm.nih.gov/Traces/sra).> Validation of SMS variants was conducted by Sanger DNA sequencing as previously described [ 17].
The sensitive nature of data being submitted by users on a platform like Grace, though, means many people are likely to be uneasy about their data being made accessible.
Work on the full 1000 Genomes Project meanwhile continues, with all data being made accessible to scientists online.
All information, which could lead to patient identification, was removed before the data were made accessible for research purposes.
While in Healthbank such data can be made accessible for an economic return to the data owner, this is not the case in MIDATA.
Scope remains for the further empirical analysis of data from impact studies, which requires these data sets being made accessible to more researchers.
Improved statistics and financial data must be made accessible for analysis and intelligence.
The council said this data must be made accessible unless there were well-founded reasons for not doing so, such as intellectual property rights or security or privacy issues.
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