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It has demonstrated that establishing a privacy-protecting data linkage facility has actually reduced requests for name-identified information from health data custodians [ 25].
The 45 and Up Study data and APDC were linked using 'best practice protocols' for preserving individual privacy by the Centre for Health Record Linkage (CHeReL), an independent data linkage facility [ 17].
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Working closely with data custodians and State-based data linkage facilities, the CDL has designed and implemented a linkage system to enable research at national or cross-jurisdictional level.
Going forward, current investments in data linkage facilities across Australia will improve linkage processes, providing access to a broader range of health care data (e.g. covering primary and secondary settings), as well as placing a greater emphasis on improving data quality and recording practices.
Data linkage facilities exist in many parts of the world including Australia, the UK and Canada [ 4, 9– 12].
Data linkage "systems" or "facilities" exist in only a handful of countries including Canada [ 7], England (Oxford) [ 8], Scotland [ 9], Australia [ 10] and most recently in Wales through the development of the SAIL system [ 11].
Data linkage was approved by the Commonwealth Department of Human Services.
Data were obtained through the Western Australian Data Linkage System (WADLS).
This linkage facility is critical for error correction, in case of withdrawal of consent, for feedback of clinically relevant findings and in managing some longitudinal data.
To enhance spatial analysis of those data being collected, the HDSS also runs the data linkage system that enables it to link health facility based information with vital events.
An observational cohort study using data linkage.
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