Cases and population data for registries based within the same country were combined, creating a total of 62 data points (5 from Africa, 7 South and Central America, 12 North America, 16 Asia, 29 Europe 29 and 3 Oceania 3).
Before relying on registry data for a registry-based vaccine effectiveness study, therefore, we suggest that it would be prudent to conduct an evaluation of the registry's population coverage and data quality.
The data for this registry is collected prospectively.
All individuals collecting the data for the registry will be trained in data collection and data entry methods.
Data for this registry were gathered at each centre by investigators instructed on the use of standardised electronic case report forms (e-CRF).
Data for the registry was updated nightly from the electronic health record and included demographics, laboratory results, medications, transplant and dialysis status, and information about past and future clinic appointments.
In addition, a structured pathology report facilitates efficient extraction of information for registries, data collection, and research purposes.
The local cancer registries are independent and currently differ considerably in their method of data collection, with some being fully automated with all information flowing electronically and others relying on hospital staff to extract data for the registries [ 4].
For both the descriptive incidence data and the survival analyses, the SEER April 2011 research data for 17 registries were used to analyse data for all primary brain and CNS lymphomas diagnosed between 2000 and 2008 (SEER, 2011b, 2011c).
The SEER April 2011 research data for nine registries were used to analyse trends in incidence data for all primary brain and CNS lymphomas diagnosed between 1980 and 2008 (SEER, 2011a).
