The registry is part of the FRANCIM Network and as such, its exhaustiveness and data quality are regularly checked by the French Institute of Health and Medical Research INSERMM) and the International Agency for Research on Cancer (IARC).
First, the need of original data led to lack of exhaustiveness since a substantial proportion of authors was unable to share their data and answer our questionnaire.
This study presents the first results of an miRNA profile expression analysis in DT in a cohort of patients included in a clinical phase II trial (Desminib trial) that ensures a good quality follow-up and exhaustiveness of the data recorded.
The exhaustiveness of the death data is 96,5%, by comparing the total number of cases collected from the death and birth registries of the study area City Halls with the cases obtained from the National Epidemiological Center for Medical Causes of Death (CepiDc-Inserm).
The exhaustiveness of the information collected is difficult to prove, the decision-making process can be unclear, and access to certain documents problematic [ 1].
DOI: http://dx.doi.org/10.7554/eLife.08719.010 10.7554/eLiFigure19.011 Figure 2 figure supplement 4. Exhaustiveness of sampling and robustness of cross-link data.
In discussing the limitations of this study, I will focus mainly on representativeness and generalizability of the findings, exhaustiveness of the analytical coverage and nature of the data.
This source of data, although available at the time of study, was not assessed for the exhaustiveness of its integration into the Registry information system and therefore has not been included in the analysis.
The objective was to evaluate the sensitivity, specificity, exhaustiveness and accuracy of the nosocomial pneumonia (PN) and bacteraemia (BAC) data reported by Belgian ICUs to the National Surveillance program (NSIH).
The cases were identified through the data collection system of the French National Registry of Childhood Blood Malignancies which has a high degree of exhaustiveness (> 99% of AL diagnosed in mainland France) (Clavel et al. 2004), making case selection at the identification stage unlikely.
Another question concerns the exhaustiveness of the British examination.
