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How do you scale data consent at a national or global level while remaining secure?
Even bigger points of contention as of late have been issues around data consent and treatment.
As noted above, there is a degree of leeway for EU Member States in how they implement some parts of the regulation (such as with the age of data consent for kids).
PC was also involved in acquisition of data, consent inform and Ethical Committee relationships and clinical follow-up.
Thus, our data consent to reconsider the concept that NGT subjects are a homogeneous group with a low cardiovascular and metabolic risk profile.
In addition, our data consent to reconsider the concept that NGT subjects are a homogeneous group with a low CV risk.
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Lappalainen, I. et al. The European Genome-phenome Archive of human data consented for biomedical research.
Lappalainen I, Almeida-King J, Kumanduri V, et al. The European genome-phenome archive of human data consented for biomedical research.
With the increasing popularity of broad consent, and the intentional re-purposing of older, variably consented, samples and data, consent-led review will be neither sufficient nor flexible enough to safeguard against all possible harms.
The European Genome-phenome Archive of human data consented for biomedical research.
This database contains de-identified data (consents cannot be obtained), and has been deemed exempt from IRB approval.
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