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The Korea Acute Myocardial Infarction Registry (KAMIR) was the first nationwide, population-based, multicenter data collection registry in Korea designed to track outcomes of patients presenting with acute myocardial infarction (AMI).
The KAMIR, launched in November 2005, is a Korean prospective multicenter data collection registry reflecting real-world treatment practices and outcomes in Asian patients diagnosed with AMI.
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A population-based cohort study was undertaken using routinely collected linked data from the New South Wales Perinatal Data Collection, Admitted Patient Data Collection, Register of Congenital Conditions, Registry of Birth Deaths and Marriages and the Australian Bureau of Statistics.
Importantly, during the most recent wave of data collection, this registry started collecting information on type 2 diabetes in children.
Neonatologists involved in this procedure must be encouraged joining a national data collection and registry.
In research where all participants have given their informed consent on data collection, no registry notification needs to be made.
To validate the accuracy of data collection, cancer registries send the collected data to the concerned consultant breast surgeon.
Thus, there is still a considerable gap between clinical patient documentation and supplementary data collection for registries, quality assurance and research.
The incidence of OHSS reported in the literature varies depending on the data collection method (registries, clinical trials), the population studied and the interpretation of the definitions/classifications used; however, it is estimated to be around 6 12%, with the presentation of severe cases being about 2 4% (Out et al., 1995; Enskog et al., 1999; Devroey et al., 2009).
Data collection varies from registry to registry and also from one year to another within a single registry [ 8].
Although data collection for the Registry is voluntary, it receives cooperation from all hospitals undertaking joint replacement surgery [ 21].
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