Many lipidomics researchers use the software that came with their mass spectrometers only for initial data collection, preferring to export the data to another program for analysis.
Moreover, this kind of data collection was preferred versus the pattern of interviewing the parents, taking into account main drawbacks.
Our current longitudinal research projects demonstrate that a flexible approach to the timing of data collection is preferred by patients and maximises data collection opportunities at a time when participants can be vulnerable.
Electronic data collection is preferred by patients [ 22, 23], reduces missing values compared to paper and pencil methods [ 24], allows tailoring of questions to minimise patient burden, and has the potential for automatic entry of data into medical records [ 23, 25].
Data collection from patients is preferred for studies measuring patient intervals.
Qualitative data analysis was done in English while conducting the analysis in the language of data collection would have been preferred.
Specific issues meriting consideration include the data collection environment, gender relations, preferred informed consent procedures, sensitivity about compensation, possible involvement of family members as incidental research participants, and privacy concerns due to a perceived sense of vulnerability.
Although a longer data collection period would have been preferred (and some currently available instruments allow this), compared with our AM system these other instruments provide less detailed information on a subject's activities.
To measure changes over time in symptoms such as SOB, which may vary on a daily basis, data collection using a diary is preferred as patients are more likely to recall their level of SOB while performing each activity accurately.
The search was conducted in September 2015 according to the search strategy and data collection guidelines of the Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) statement [10].
