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Their hope is that achieving a consensus on CDEs will facilitate high-quality stroke research by shortening the development time of data collection materials (and procedures), maximising the quality and relevance of the research data collected and facilitating data sharing across trials and other investigations.
Data collected in this study were analysed iteratively during data collection and novel relevant issues were incorporated into data collection materials as appropriate [ 25].
Details regarding site selection, project management, and data collection materials and methods are described elsewhere (19).
Hard copies of data collection materials did not identify patients; they had identifiers for health facilities and districts.
EP consulted on the initial design of the study and development of the methodology and data collection materials, and helped to draft the manuscript.
Surveys at baseline and follow-up sought to collect data on changes in behaviour and beliefs and also pilot the use of data collection materials.
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This was followed by the data collection material.
The data collection material consisted of an interview schedule, Talking Mats™ visual framework material together with visual and receptive language screening tool.
Properly designed data collection material was developed from Ethiopian federal ministry of health chronic HIV care follow-up form and patients' card.
Throughout data collection, further materials shared by stakeholders (i.e., patient education literature; technician installation instructions) were also reviewed as well as new documents posted online.
The interview questions were pilot tested with five people and no changes were required prior to data collection (Supplementary material).
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