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Finally, it means holding the reporting companies and the creditors who feed them data accountable for accuracy.
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To confront the inevitable surge in attacks, 2013 should be the year of mandatory encryption, stringent security, and tough legislation holding negligent data stewards accountable; and "accountable," dear friends, means doing hard time, not mouthing lukewarm mea culpas.
Clancy also apologized on Wednesday for "this wholly avoidable and embarrassing misconduct" and pledged to hold those responsible for the data breach accountable.
Citizens often talk about the need for security and privacy, but we've proved mostly unwilling to hold the data leakers accountable.
Furthermore, processing of personal information requires that its purpose be specified, its use be limited, individuals be notified and allowed to correct inaccuracies, and the holder of the data be accountable to oversight authorities (OECD 1980).
"Are we going to dig into the data and be accountable for results?
Though when Randall said, "In the future we won't have Girls' Lounges, we'll just have Peoples Loungess," I had to blurt out, "Sorry Randall, we will always have Girls' Lounges!" Own your data and be accountable for change.
Finally, because the highest-risk devices come from cardiovascular and musculoskeletal systems, these areas should be prioritised for independent national registries of implantable devices with publicly accountable data.
Further, human rights better protect privacy than status quo informed consent arrangements or bioethical norms alone, for they can (1) hold data users legally accountable, (2) promote feasible, ethically robust standards of data governance, and (3) treat privacy and scientific advancement and its benefits as human rights (not mere interests) to promote, respect, fulfill, and balance.
Administrative staff make substantial, time-consuming, and largely 'hidden' contributions to the quality of patient data, considering themselves accountable to patients as well as doctors for the quality of this work and making ongoing nuanced moral judgements about how best to act in situations of uncertainty.
It takes the continued vigilance and action from watchdogs, community leaders and our elected officials to hold these data-gathering companies accountable and to ensure that companies are doing the right thing.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com