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We performed a cohort study with pre- and post-counselling patient measurements using questionnaires, supplemented with evaluations of the group counselling format by the professionals involved.
The legal department of our hospital approved the patient information material we compiled and the group counselling format regarding informed consent and privacy issues.
The genetics professionals involved were less enthusiastic about the group counselling format than their regional cardiologic colleagues: one positive aspect mentioned was that more, and possibly different, patients were reached and informed by this new approach.
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Adherence, as measured by pill counts, was higher in patients who were counselled in a group-based format (90%) compared to those counselled individually (69%).
In genetic counselling, generally the same formats are used, although one study recently revealed that a time horizon is not often stated in breast cancer counselling [ 35].
Pre-pregnancy counselling is recommended but the format of the counselling process and the experience of the patient have never been assessed.
Importantly, our study presents occurrence and recurrence risks of breech presentation in an accessible format for patient counselling.
17% of the women found the pre-pregnancy counselling process intimidating in the format of a 'panel' of three doctors.
Additional research is needed, with regard to time investment, to determine the most appropriate format of the group counselling sessions for both the patients and professionals involved.
We will examine whether brief sex counselling is preferable to more intensive formats of sexual health care and delayed treatment in terms of costs, impact and utilities from a social perspective.
This checklist includes information about the participant's risks e.g. individual estimated risk of getting breast cancer, also describing the risks formats that were used during counselling.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com