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We encourage the DBS community to contribute patients to this database with the aim of collecting systematic evidence of treatment effects in this rare condition.
The centres are listed in Appendix A. DBS and movement disorders centres around the world were contacted and asked to contribute patients with NBIA who were treated with GPi-DBS.
Representatives of all centres that contribute patients to the study will be jointly named the "DACAPO study group" and will be acknowledged as such in each scientific paper emerging from the study.
Patients, recruited to the British Society for Rheumatology Biologics register in 2008, a national registry to which our hospitals contribute patients, had disease of longer duration and higher DAS28 scores at baseline but a smaller proportion of patients on oral steroids.
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ICC member organizations contribute patient level electronic data to I-Care on medically indigent patients.
Moreover, most of these registries are based on the willingness of the centers to contribute patient data.
PT, MF and DD contributed patients.
SAAN helped with study design, contributed patients and revised manuscript.
Internists, cardiologists, and endocrinologists contributed patients to the study.
SAHR helped with the draft of manus and contributed patients.
WQ, RS, and MM contributed patients to the study.
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CEO of Professional Science Editing for Scientists @ prosciediting.com