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Of the 842 patients asked to participate, Carstairs and Morris scores could not be provided for 43 postcodes (consenting group N=33, refusing group N=10).
Carstairs and Morris scores were not available for 33 people within the consenting group.
The demographics of the consenting group and genre of creative work is presented in Table 1.> All those who responded found it helpful having the option to use a creative medium and thought that a palliative care patient visit was an appropriate topic area for this.
The refusing group tended to be less affluent than the consenting group, but this did not reach statistical significance; IMD participants range 2.01 (most affluent) to 75.85 (most deprived), median score=16.76 and non-participants range 2.58 (most affluent) to 73.21 (most deprived), median score=20.29 t=−1.9311, d.f.=271, P=0.055).
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During the enrollment phase, however, refusal rates in the passive consent group were significantly higher (38.1% vs. 12.2%; P =.004).
In the pre-enrollment phase, opt-out rates were significantly lower in the passive consent group compared with the active recruitment centers (1.6% vs. 11.8%; P <.001).
In the 'one-time consent' group 85% sent back their consent form.
Of the patients in the 'one-time consent' group, most returned the consent form as requested.
The mortality rate was significantly higher in the surrogate consent group.
Fifty-one consent forms (85%) were received from the 60 patients in the 'one-time consent' group.
Women in the informed consent group were sent the decision aid describing the advantages and disadvantages of each management strategy (as described in McCaffery et al).
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CEO of Professional Science Editing for Scientists @ prosciediting.com