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Patients in this registry have given specific consent to be contacted for possible participation in future clinical studies and most of them have also consented to provide samples for the serum and tissue bank.
All patients have consented to provide their data for research and publication.
Parents were highly willing to engage; nearly 70% of those approached consented to provide reports about their concerns, and their child's disease and treatment experiences.
Among 11,100 eligible drivers, 8802 (79.3%) voluntarily participated in the 2013 NRS, and 4669 (42.1%) consented to provide both blood and oral fluid samples for drug and alcohol testing.
It is worth noting that less than half of the eligible drivers (41.4%) consented to provide both whole blood and oral fluid samples and these consenting drivers were less likely to be white and report using marijuana recently than those who refused to provide specimens.
Patients and controls are consented to provide a non-fasting blood sample and to complete a questionnaire.
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To create a statistical model, they compared a subset against 1,500 patients that had also consented to providing DNA.
Patients who were undergoing gastroscopy for indications decided by their treating physician, and who consented to providing biopsy specimens for this study, were screened.
The final study number was 2113, of which 1914 consented to providing blood samples for DNA analysis.
We are grateful to all of the patients who consented to providing tissues for this study.
Owners consented to providing the information by completing the questionnaire after reading an information sheet.
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