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Franken's proposal would place new rules related to smartphone location data, especially how often users would have to expressly give applications consent to use data and how they could seek legal redress for violations.
Written consent to use data and to publish was obtained form each individual participating in this study.
They provided consent to use data gathered with questionnaires that they co-designed as well as grab and passive samplers.
Written informed consent to use data made anonymous was obtained from the patient (if possible) or from the patient's legal representative.
We sought all studies reporting characteristics of participants and non-participants approached for informed consent to use data from their medical records for prospective observational studies or registries.
3 4 5 As with many other aspects of research, requirements for informed consent to use data from medical records vary across research ethics boards within and among countries.
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According to French legislation (articles L.1121-1 paragraph 1 and R1121-2, Public Health Code), no informed consent is needed to use data for an observational study and informed consent from patients or relatives was waived by the institutional review board.
Community consultation is not required and consent is sought for permission to use data that have already been collected.
Fifty six participants withdrew consent to use their data but were included in an intention to treat analysis, with their data analysed as for those with missing outcome data.
In the event of their withdrawal, as data collected so far cannot be erased, the researchers will seek written consent to use the data in the final analyses.
The study respondents provided consent to use the data for publication purposes.
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