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Passive recruitment (opt-out vs. opt-in) Seen as especially important in the school setting, researchers embraced the opt-out consent strategy as effective for study recruitment.
To fulfill Food and Drug Administration and Department of Health and Human Services emergency care research informed consent requirements, our burn center planned and executed a deferred consent strategy gaining Institutional Review Board IRBB) approval to proceed with the clinical study.
Table 1 Consent strategies presented to participants Consent strategy Features Traditional, Project-Specific Consent Participants are asked for consent for all new uses of their data, including sending it to a repository and every time a new researcher wants to access it.
A dynamic longitudinal consent strategy for biobank research is promoted by some leading ethical and legal scholars.
The dynamic consent strategy aims to enable the return of such research results to individuals in an easy and tailored manner.
In another paper she writes that the dynamic consent strategy 'could be used as a basis for cutting down on research ethics oversight for secondary research'.
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Ultimately, more information is needed on parents' preferences and motivations for consent strategies for secondary use, especially for non-biological data.
Along with the question guide, each participant was provided with a Backgrounder document that detailed the types of internal and external regulation data repositories would be subjected to and the alternative consent strategies for participants to consider (see Additional file 2).
Randomised trials of 'opt-in' versus 'opt-out' consent strategies have demonstrated higher rates of recruitment and similar rates of retention, with an overall gain in participants for opt-out consent strategies.
Furthermore, in an area of increased attention to consent for genomic research and bio-banking, knowing the state of the literature on effective consent strategies is essential.
The attention to research informed consent in recent years highlights the need for up-to-date, concise summaries of effective consent strategies.
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