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Patients were also asked to consent to digital photographs of the breast.
To standardize the clinical diagnosis, we first conducted a pilot study in which cases determined to be IBC at two of the study hospitals were enrolled over a 7- to 9-month period and asked to consent to digital photographs of the breast and detailed clinical examinations in which the presence, extent, and duration of various signs/symptoms of IBC were recorded.
Each respondent gave informed consent for digital-recording of the interview or focus group and use of resulting data.
Part of the GDPR governs the age of digital consent and whether it should be increased to 16 from 13.
Controversial plans that could have seen those under 16 blocked from social media by the increase in age of digital consent were watered down in the final text.
Their policies are based on the age of digital consent being 13, as defined by the US Children's Online Privacy Protection Act (Coppa) and similar laws in the EU, which afford those under 13 extra privacy protections.
The last-minute amendment to the new European data protection regulations would make it illegal for companies to handle the data of anyone aged 15 or younger, raising the legal age of digital consent to 16 from 13. Companies wishing to allow those under 16 to use their services, including Facebook, Snapchat, Whatsapp and Instagram, will have to gain explicit consent from their legal guardian.
Critics of the original plan to raise the age of digital consent to 16 have argued that most people that age are already on social media.
All interviews were recorded with the consent of participants using a digital recorder and later transcribed.
The series of digital shorts called "F**k Yes" highlights how affirmative consent is not only vital -- but can be a really awesome turn on.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com