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The documents reviewed provided information related to the formation of the registries and information concerning the registries' capacity.
However, the use of large databases is not free of certain problems, especially those concerning the reliability of registries.
This study describes comprehensive data from a breast cancer registry concerning the use of endocrine treatment (ET) and chemotherapy in the first, second and higher therapy lines in hormone receptor (HR) positive, HER2 negative metastatic breast cancer (MBC).
A crucial factor concerning the utility of cancer registries is data quality in terms of comparability, validity, timeliness and completeness [ 12, 13].
Annual updating of cancer registry data concerning the metal-on-metal issue is advisable.
There is also a need to validate registry data concerning the alcohol-related diagnoses.
In the first round, we asked the experts if they agreed with our proposal concerning the appropriate output of a registry, and sought their opinion on the completeness of the set of indicators.
These points are important to mention, when regulations concerning the publication of results and registries are being extended to the European Union.
The standardization of the coding and determination of the stage of the solid tumors was done by all personnel (three physicians and two nurses) concerned with the registry; an excellent concordance was obtained (unweighted Kappa of 0.85) [ 11].
Certain specialised registries systematically record data concerning the initial treatment.
The first part was a registry that included essential information concerning the respondent, while the second included closed-ended questions.
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CEO of Professional Science Editing for Scientists @ prosciediting.com