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Four of the top five needs expressed by 40% or more of the responders concerned information needs (diagnosis, future conditions, dialogue with doctors, economic-insurance solutions related to the disease).
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The 72-item CaTCoN measures cancer caregiving tasks and consequences and the caregivers' needs mainly concerning information from and communication and contact with health care professionals [ 22].
New available sources of information (e.g. the internet) could have changed the nature of their concerns and information needs.
Parent communication focussed on their concerns and information needs, whereas clinician communication focussed on diagnosis and treatment decisions.
The short hospital stays have the effect that the patients' concerns and information needs must be focused and timely.
Some saw the potential of the PHA questionnaire to raise awareness about preconception health, and others highlighted differences in concerns and information needs according to locality: if you were thinking of having a baby and you saw that women's preconception health [questionnaire] you'd at least have access to some information to think about.
Set 5, given after the participants learned that the outbreak of RVFV was intentional, reassessed decisions and actions regarding job and family concerns and information needed to make these decisions.
Multiparous women were another group who expressed unique concerns about unmet information needs.
From the social insurance physician's point of view, these two perspectives could be summarised respectively in the interview as patient-centred behaviour (i.e. behaviour that puts the patient and his/her concerns, perspective and information needs first), and physician-centred behaviour (i.e. behaviour that puts the physician's perspective and information needs first) [ 28].
At the end of Sections 2-7, there was a question about information needs concerning the topics covered in the section.
As shown in Table 4 the intervention group counselees had higher fulfillment scores concerning their cancer genetic information needs (β =.31; CI:.03 to.60; P =.03; d =.22).
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com