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The existing system of increasingly complex consent forms that most of us approve without reading just doesn't work.
However, it is not clear that "real" willingness to donate is a more accurate measure of willingness: it may well be that in a clinical or research setting individuals feel additional social pressure to donate or be overwhelmed by lengthy and complex consent forms.
Longitudinal studies demand lengthy and complex consent forms.
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Furthermore, even when the consent form is orally read out to patients, many of the less educated patients might not be able to absorb the relevant information from what may be a complex consent form for them.
Previous studies have shown that informed consent forms are often too complex for the average patient [ 10, 11].
The consent forms involved, explaining concepts and methods, are complex by nature and difficult to understand [ 19- 22].
Visitors signed consent forms.
(All participating families will sign consent forms).
If they agreed to take part they completed the ethical consent forms giving written informed consent.
All patients provided informed written consent through Research Ethics Board-approved consent forms before study enrolment.
Parents are being sent letters and consent forms.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com