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The Swedish Hip Arthroplasty Register (SHAR) has 100% coverage (participating hospitals) and 98% completeness (registration on an individual basis) regarding THAs (Garellick et al. 2010).
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Classification of T1NxMx as a complete registration may thus give a more meaningful estimate on the completeness of stage registration in the DCR.
The Estonian Cancer Registry database has been validated for completeness of registration, with the overall completeness of registration being 90.8% in 1998 [ 20].
Overall, the completeness of registration of 1st follow-up visits in the NMSC database compared with registration in the medical record review was 85%, but varied according to clinic: 100% and 71% in clinic 1 and 2, respectively.
Another limitation is that hospital diagnoses may be wrong, so that patients with cirrhosis are not registered with the diagnosis (low completeness of registration), or patients registered with the diagnosis do not have cirrhosis (low positive predictive value of registration).
Completeness of registration of individuals Accuracy and degree of completeness of the registered data Size of the data source Registration period Data accessibility, availability and cost Data format Possibilities of linkage with other data sources (record linkage).
To insure the completeness of registration, more comprehensive solutions involve data linkage of cause of death registers with medical birth registers or birth registration records (Denmark, England and Wales, Finland, Norway and Slovenia), abortion records (Finland) and hospital records (Denmark and Finland).
Furthermore, as discussed above, completeness of registration remains a problem if one cannot cross-check the cancer register with other sources using record linkage.
Completeness of registration of intervention specifics was analysed according to funding source and trial phase.
Multiple logistic regression analysis showed that funding source was not a significant predictor of completeness of registration of intervention specifics (p = 0.39), but that study phase was (p<0.001).
Regression analysis with robust estimation of variance for clustered samples was used to assess whether these variables influenced completeness of registration of intervention specifics [43].
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