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The importance of ensuring representativeness of the enrolled ALS patients, collecting uniform, standardized data across multiple countries, ALS registries, or clinics remains a challenge for such studies.
When, after sufficiently reassuring preclinical studies, new technologies or treatments are introduced into clinical practice, this should ideally take the form of clinical studies aimed at prospectively collecting uniform data.
32 From an assessment perspective, some national or nationally representative patient registries can be defined as observational studies collecting "uniform data, to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure".
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Instead there is a gear guy, a Swede whose hobby is collecting uniforms.
When a group of our players heard their story, they quickly went to work collecting uniforms, sneakers, and basketball equipment from teams around the league to send to their newfound sisters.
Mr. Kadamus said that in part, the criteria for the new list were chosen because the state had collected uniform information on weapons possession and use for several years now.
"The EU is now trying to collect uniform statistics across the EU countries," points out Londa Schiebinger, a professor of gender studies and the history of science at Pennsylvania State University, University Park.
Phone calls were routed to a local or district health department where an ORV-specific form adapted from the Ohio State Health Department was used to collect uniform information about bait contact.
The well-trained case managers used the registry software and collected uniform information about all patients with breast cancer who had been examined at least once as outpatients or inpatients in the daily clinical service.
A patient registry is an organized system that uses observational study methods to collect uniform data and evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s) [ 17].
The Agency for Health Care Research and Quality (AHRQ) in the US has defined patient registries as an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s) [ 28].
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