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A highly synthesized version of the data presented to panelists is reported in Table 1 (details, referencing, and access to sources are available on the collaborative registry at http://www.evidem.org/evidem-collaborative.php).php
The framework is also applicable for research planning, communication and knowledge translation; the last is currently being explored through a web-based open-access collaborative registry structuring data on healthcare interventions (high level synthesis, details and full text sources) using the framework components of decision.
Here we report on a study based on a collaborative registry, involving 12 Spanish centres, of molecular diagnostic tests in 1105 fragile X families comprising 5062 individuals, of whom, 1655 carried a full mutation or were mosaic, three cases had deletions, 1840 had a premutation, and 102 had intermediate alleles.
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A collaborative EVD registry was designed to facilitate local quality improvement projects to be implemented at any location using standardized data collection instruments through resident collaboration to reduce and study EVD infection and prevention.
The collaborative CERRERA registry [ 55, 56] has also suggested utility of rituximab but in contrast to the Swiss study, following TNFi toxicity as opposed to lack of efficacy [ 57].
Practice coaches, learning collaboratives, or registry-based population management software facilitated practice changes.
Collaborative Islet Transplant Registry.
The Collaborative Islet Transplant Registry (CITR) collects data on clinical islet isolations and transplants.
Establishing a collaborative international rabies registry with a particular emphasis on immunocompromised patients could therefore provide evidence that would contribute to decisions regarding the appropriate vaccination protocol.
Collaborative health outcomes information registry.
In the U.S., a collaborative health outcomes information registry (CHOIR) is currently being built from patient data provided by US American care centers [18].
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