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Variations in question wording (such as open-ended questions versus checklists in Simon and Kendrick's study) and our sample's attendance at a carers workshop account for some of this, but the differences are still striking.
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To define in detail symptom burden, service provision and factors affecting care pathways we shall use mixed methods: prospective cohort studies of people with advanced dementia and their carers; workshops and interactive interviews with health professionals and carers, and a workshop with people with early stage dementia.
The items for the Accommodation and Enabling Scale for Eating Disorders were generated by a panel of clinicians and researchers using transcripts of recordings from a series of pilot carers' workshops and earlier quantitative and qualitative work with families [ 2, 4, 11, 15, 29].
CB, GWR and HO led the patient and family carer workshops.
The aim of the carer workshops was to provide information and skills training for carers of people with eating disorders in order to improve their coping strategies and reduce the levels of difficulties and distress.
A limitation is that the study participants had mostly chosen to attend a workshop on carers and may have been an atypical group motivated to support carers.
Likewise, in the final workshop a carer stated: 'I'd like nurses to take more notice [of carers].
We investigated carer needs through six concept mapping workshops with carers, patients and health professionals.
49 50 We shall involve people with early dementia, carers are included in workshops across the UK and an expert by experience joins our steering group.
Information will be obtained from the group leaders in the sheltered workshops, informal carers or staff members in sheltered housing institutions and the person with ID.
Student's t-test was used to assess measured change following the workshop intervention for carers.
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