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The conceptual model of caregiver health literacy developed by the authors (Yuen, Dodson, Batterham, Knight, Chirgwin, & Livingston, in press) was used as the basis for the development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C).
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The measure assesses the quality of the mother-infant relationship across four caregiver scales (sensitivity, structuring, nonintrusiveness and nonhostility) and two child scales (responsiveness and involvement).
An estimated 20.7% of mental disorders in caregivers, Zarit scale also can discriminate psychological distress with a sensibility of 93% and specificity of 80%.
The following research question was addressed in this study: What are caregiver perceptions of how the Caregiver Burden Scale (CBS) and Clinical Nurse Specialist (CNS) Performance Appraisal describe the level and quality of care that caregivers provide to their loved ones with Alzheimer's disease?
The groups were compared and analyzed regarding levels of caregiver burden, measured with the Caregiver Burden scale, and the perceived impact of stroke in everyday life, measured with the Stroke Impact Scale (SIS).
CRA: Caregiver Reaction Assessment; CRS II: Caregiver Reciprocity Scale; FIM: Functional Independence Measure; Health-related quality of life; QMI: Quality of Marriage Index; SF-36 MCS-Mental Component Summary score; SF-36 (PCS -Physical ComPCS -Physicaly sComponentQOL: Summaryscorefic Quality of Life Scale.
Caregiver burden was assessed using the Caregiver Burden Scale.
Caregiver burden was assessed at 12 months using the Caregiver Burden Scale, 23 and self-reported data on informal care (yes or no) from caregivers were collected in an interview.
The BPSD were assessed using the neuropsychiatric inventory (NPI); caregiver burden was evaluated using the NPI caregiver distress scale (NPI-D).
These two time measures are derived from the 4-item Caregiver Vigilance Scale used in the Resources for Enhancing Alzheimer's Caregivers Health (REACH I) study [ 18].
SF-36 (PCS): Physical Component Summary score, CRA (negative): Caregiver Reaction Assessment (negative domain score), SS-QOL: Stroke Specific Quality of Life Scale; CRS II Caregiver Reciprocity Scale subscales- CRS II (balance) balance within family caregiving, CRS II (intrinsic): intrinsic rewards of giving, QMI: Quality of Marriage Index.
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