Relevant items for this inventory were selected from existing questionnaires applied in other studies about caregiver tasks and caregiver burden.
To gain insight into the caregivers tasks and time spent, relevant contextual factors (age, gender, relation to MS-patient, health status), personal experiences with caregiver tasks (e.g. (not) heavy, (not) problematic) we developed an inventory.
If the dementia patient has more than one family caregiver, the primary caregiver is the one who coordinates the caring process, mostly the person who spends the most hours on caregiver tasks.
If an eligible patient has more than one informal caregiver, the primary caregiver is the one who spends most hours on caregiver tasks and who coordinates the caring process.
The pre-publication history for this paper can be accessed here: http://www.biomedcentral.com/1472-6963/10/142/prepub wantantothankank the patients and caregivers who participated in this study for their efforts made by filling out our questionnaires and sharing their personal information about the consequences of their disease and caregiver tasks and burden.
Questions were open-ended queries (e.g., " Please tell me about your experience completing these two questionnaires" and " Are there caregiver tasks or questions you think we should be asking that are not currently on the questionnaire?") designed to elicit discussions around the appropriateness of the two questionnaires for measuring level or quality of care.
This study investigated informal cancer caregivers' experiences of caregiving tasks and consequences and how caregiver status (primary vs. non-primary caregiver) and the caregiver's relationship to the patient (spouse/partner, etc).
Among them, two studies recorded data through a calendar and caregivers were asked to report time spent by themselves and other caregivers on caregiving tasks and only regarding Alzheimer disease [ 21, 22].
To measure the proportions of cancer caregivers experiencing burdensome caregiving tasks and consequences To investigate how caregiver status and the caregiver's relationship to the patient are related to the caregiving tasks and consequences.
The aims of this study were: A) To measure the proportions of cancer caregivers experiencing burdensome caregiving tasks and consequences B) To investigate how caregiver status and the caregiver's relationship to the patient are related to the caregiving tasks and consequences.
