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With the NPPA process now reported in our findings as enabling the capturing of patients with cancer subtype information, cancer medicine outcomes may become easier to measure and, if positive, make it harder to decline funding treatments.
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Fortunately, we were able to link participants with the SSDI, which should capture deaths of patients regardless of loss to follow-up at Cleveland Clinic.
Another strength of this study is the large body of qualitative research available for synthesis on this topic: we were able to include 86 studies that together captured thousands of patients' experiences.
Future studies on the subject of ED utilization by HIV-infected adults should be conducted in a multicenter fashion to allow capture of patients both in high and low prevalence settings.
3 Similar attempts using algorithms to improve capture of patients with bone metastases have been attempted in other population-based data sources, such as in the Danish National Registry of Patients (DNRP), 14, 15 demonstrating limited sensitivity but high specificity.
Recognizing the limited performance of CKD diagnosis codes, we enhanced our capture of patients with underlying kidney disease by examining prior visits to a nephrologist, which we postulated as a reasonable surrogate for kidney disease.
Nevertheless, self-report is the only means of capturing patients' stage of behaviour change.
The measures are seen as ways of capturing patients' perspectives of their disease and treatment, their perceived need for healthcare and their preferences for treatment and disease outcomes [ 8].
In the US, self-completion questionnaires are used to capture aspects of patient satisfaction, e.g. with the degree of involvement patients had with decision-making about their care.
PROMs are measures, normally short self-completion questionnaires, used to capture aspects of patient health status or health-related quality of life (HRQL) that come directly from the patient [ 27].
PROMs are short self-completion questionnaires designed to capture aspects of patient health status or health-related quality of life reported directly by the patient without any interpretation by a clinician.
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