Eighty-seven percent of patients with SAA who completed the survey noted that achieving transfusion independence may result in a smaller burden on time and monetary cost of treatment.
Patients largely agreed that transfusion independence would result in less burden on time and costs, greater control and quality of life, less fatigue (86.7% noted each) and less scheduling around medical appointments (83.3%).
Over 80% of patients reported that achieving transfusion independence would result in less burden on time, less need to arrange life around medical appointments, improved quality of life, less fatigue, and feeling in control despite their health condition.
Over 80% of patients agreed that achieving transfusion independence would result in less burden on time, less need to arrange life around medical appointments, improved quality of life, less fatigue, and feeling in control despite their health condition.
State demands for birth certificates or other forms of identification create a burden on time and cost that falls most harshly on the poor and minority population.
Conversely, the Berlin Questionnaire can generally be completed within 15 20 minutes, and poses a smaller burden on time regarding grading due to use of 15 MCQs.
There were five themes that came out from the final analysis including, stigma and emotional burden, burden on time, economic burden, available support for caregivers, and the coping strategies adopted by caregivers.
As the number of patients and disease types that apply for NGS-based diagnostics increases, Sanger-based complementation may put a disproportionate burden on time and budget of individual CGCs.
If you find that a new tradition becomes a burden on time or other resources, it's either time to delegate that task, streamline it (ex: buying prepared cookie dough vs. making from scratch), or skip it in favor of something else entirely.
However, on an inside page of the very edition that chronicled the drama in Worthing, the Argus lamented that Sussex police are now swamped by burdens on their time that prevent them from attending to "what really matters to taxpayers".
