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No specific instrument has thus far been developed for measuring the caregiver burden perceived by parents of children with allergies (CWA).
To evaluate the impact in Health Related Quality of Life (HRQoL), the time commitment and the burden perceived by the principal informal caregiver (PC) of Alzheimer's patients (AP) in Spain, as well as the typeand amount of external help received.
The family caregivers also registered caregiver burden, perceived health, sense of coherence, and satisfaction in the role as a family caregiver.
Burden perceived by caregivers will be assessed with the Involvement Evaluation Questionnaire (IEQ), a self report list which is widely used and has been found valid [ 44].
There is considerable evidence that patients' beliefs about treatment (e.g. accessibility, burden, perceived likelihood of success) influence uptake and adherence [ 26].
The total score ranges from 0 to 100; scores for each dimension increase proportionally with the severity of the burden perceived by the caregiver.
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Older people who are made to feel that they are a burden perceive their lives to be less valuable, and are at risk of depression and social isolation.
We anticipated no difference between both groups regarding expected burden and perceived burden of the colonoscopy.
After this general question, we asked about two types of burden, distinguishing between an emotional and a physical burden, and whether the burden was perceived as a problem to them.
Not only expected burden but also perceived burden of colonoscopy influences the participation rate in future screening rounds.
Zarit Burden scale (ZBS): This is the most widely used scale in the studies of caregiver burden and encompasses the physical, emotional and financial burden as perceived by the caregiver[13].
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