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Measurement will be taken at the second month to minimise the burden of items at baseline, when patients may be most ill.
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Also, as the researcher may be assessing other determinants of mortality, the length of the questionnaire should be considered to avoid patient burden ('Number of items').
The disease-specific core has 24 items comprising three scales: Symptoms and Problems (12 items), Burden of Kidney Disease (4 items), and Effects of Kidney Disease (8 items).
The disease-specific core of KDQOL-36™ has 24 items comprising three scales: Symptoms and Problems (12 items), Burden of Kidney Disease (4 items), and Effects of Kidney Disease (8 items).
They comprise 11 domains, including: symptom/problem list (12 items), effects of kidney disease (8 items), burden of kidney disease (4 items), cognitive function (3 items), quality of social interaction (3 items), sexual function (2 items), sleep (4 items), social support (2 items), work status (2 items), patient satisfaction (1 item), and dialysis staff encouragement (2 items).
The dimension symptoms/problems include 34 items, effects of kidney disease on daily life 20 items, burden of kidney disease 4 items, cognitive function 6 items, work status 4 items, sexual functions 4 items, quality of social interaction 4 items, sleep 9 items, social support 4 items and patient satisfaction 2 items.
After clinician and patient interviews, concepts were further refined into four domains and 17 concepts; test versions of the PACT-Q were then created simultaneously in three languages, each containing 27 items grouped into four domains: "Treatment Expectations" (7 items), "Convenience" (11 items), "Burden of Disease and Treatment" (2 items) and "Anticoagulant Treatment Satisfaction" (7 items).
The specific items may be summarized into three dimensions: symptoms/problems (12 items), effects of kidney disease on daily life (8 items), and burden of kidney disease (4 items) [ 20].
The campaign group is lobbying manufacturers to introduce global recycling schemes that would shoulder the burden of recycling old items, a plan Aitken supports: 'When a manufacturer sells a piece of equipment there should be an automatic returns policy,' he says.
Social support, effect of kidney disease, and burden of kidney disease items exhibited a stronger relationship (>0.7).
Elevated burden across a range of items within SPARC is apparent.
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