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It should be recognised that both child and proxy ratings have value but the question is to clarify how differences in perception of HRQL arise between the child and the proxy [ 5].
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While the participants were not blinded to our hypothesis in our study, we used a standardized measure for both children and proxies.
The importance of using both child and parent proxy reports in child QoL research has also been emphasized by several authors [ 12, 29, 30].
(1) The present study illustrates the importance of obtaining both child and parent proxy reports when assessing QoL changes, in epidemiological surveys as well as in clinical populations.
Other strengths of the present study were that we compared outpatients with students matched for sex and age, and that both child and parent proxy reports of QoL were obtained.
We feel this finding further reinforces the need for both child and parent proxy report in QoL assessment because it seems that obtaining help for one's child because of mental problems or learning difficulties affected the student's parent proxy, but not the child reports in the present study.
However, it is also essential that further well designed clinical trials which utilise both child and parent proxy completed QoL measures are conducted and in particular head-to-head studies of different treatment packages with a broad range of outcomes over extended periods of time, with multiple testing points are required.
Changes were suggested for 10 of the 26 KIT items: seven were identified only by children, one was identified only by parents and two were identified by both children and parent proxies.
Analysis of child and proxy scores were completed separately [ 24].
The 52-item, child, and proxy (parent) versions were used in this study.
The DISABKIDS consists of four versions: a self-report version for children, a proxy version for parents and a child and proxy version for those younger than eight years (The DISABKIDS - Smileys measure).
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com