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Complex ethical issues remain unresolved, such as the identifiability of biospecimens and associated data, the best consent models for future research, ownership and commercial use of biospecimens, and return of individual research results.
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No consensus seems to exist on a theoretical level whether 'blanket consents', 'specific consents', 'no consents' or 'broad consents' fit best as a consent model for balancing the interest of donors and research in the best possible way.
The current informed consent model for ECT reflects an implicit commitment to the "brain-bound" model.
The primary benefit of the dynamic consent model for researchers is that it simplifies and streamlines consent and recruitment processes.
Parents do not want extreme consent models when asked for consent to share already collected research data.
Accordingly, in order to bridge this impasse, alternative consent models were proposed for biobanking research.
Neither of these can comply with EU law as they are both based on opt-out consent models where consent (for tracking) can be assumed if no action is taken by consumers.
For some parents, this concern manifested as a result of the future uncertainty of secondary use for all consent models except the project-specific consent model.
It may support existing best practice models for editing EBHI.
The best predictive models for GY-SS were for the imputed GBS models RKHSIML and RKHSIMS.
For example, two types of consent models are considered: General Consent with Specific Denials and General Denial with Specific Consent [30].
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com