The data extraction form (Additional file 2) structured in line with the motivation framework of Franco and her colleagues was used as a data registry and as a guide for identification of the determinants of motivation [ 10].
For each of these patients, the data registry holds as many records as the number of times the patient has visited the hospitals.
Large data registry such as the Surveillance, Epidemiology, and End Results (SEER) data [ 11] with good long-term follow-up data available can overcome this potential limitation.
Use of a large data registry such as the SEER database with good long-term follow-up data can overcome these potential limitations.
The largest set of recommendations in this category refers to the need to establish periodic assessment systems for the training programs (Cummins, 1973) as well as permanent and updated data registries (Raffington, 2012) that track success and impact, costs and benefits (Cummins, 1973), and areas where improvements can be made (Klinger, 1973; Portis, 20137; Marín, Carmona, and Reche, 20148).
Data collection is ongoing, and as is typical in prospective data registries, there are occasionally data fields that are not completed in the data collection process.
Numerous retrospective studies [110 120], as well as data from the ELSO registry (https://www.elso.org/), show that when ECMO is used the mean patient survival is >40 % for cardiogenic shock and >35 % for cardiac arrest.
Other sources of administrative data, such as HIV registry data, could be used to produce additional multiplier method estimates (37), but the accuracy of these estimates will depend on the availability of administrative data and possible statistical dependencies between data sources.
Many sources of data, such as data obtained from disease registries, infectious disease notification systems, and hospitalizations, provide ongoing measurement and monitoring of human communities.
We defined syndrome data as data in health-related registries that reflect infectious disease activity without identifying causative pathogen(s) or focusing on pathogen-specific symptoms (such as routine surveillance data for influenza-like illness [ 11 ] or surveillance of acute flaccid paralysis for polio [ 12 ]).
