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"As far as we are aware, we have appropriate consent for any private phone calls that appear in the series".
Human brain tissues (frontal cortex) were sampled from frozen half brains collected at autopsy with the appropriate consent for tissue retention and research use.
This includes the need for appropriate consent for processing of the data, and the need for identifying all people processing the data.
The drawback is that studies typically ask different questions about alcohol use and often include different time frames, often collect no data on drinking problems, and may not obtain appropriate consent for genetic testing.
These concerns relate to obtaining culturally appropriate consent for sample export and reuse, understanding cultural sensitivities around the use of blood samples, facilitating a degree of local control of samples and sustainable scientific capacity building.
Also, the appropriate consent for performing exome- or genome-wide analysis may have been lacking, or it may have been unclear which consent to follow; the one that the patients originally signed, or the one that centers generally apply for NGS-based diagnostics.
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Obtain appropriate consent from the woman before surgery.
Appropriate consent documents for sample donors must therefore explain the breadth of consent and other elements of the biobank governance framework.
This process of understanding allows researchers to design appropriate consent processes for the local context.
We conclude that it is important to build capacity in the design and conduct of effective and appropriate consent processes for genomic research in low and middle-income settings.
Appropriate consent was obtained for the measurements and all materials were returned to the Ajou University Hospital for disposal after the measurements.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com