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We evaluated these two aspects of an existing registry, Gynecology Surgery Registry, by mapping data elements and value sets, used in the registry, to a standardized terminology, SNOMED-CT.
This study involves retrospective analyses of an existing registry comprising 1353 patients with malignant mesothelioma who applied to the Dutch institute for asbestos victims and entered the process for getting financial compensation between 2005 and 2008 (Baas et al, 2006).
Four hundred and eighty participants (240 per study) are being recruited from the Twin Cities metropolitan area through the use of newspaper advertising, targeted postcard mailings, community outreach, and an existing registry generated from previous trials conducted by the researchers.
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Lack of registry data in 16 EU countries, shortage of data on healthcare utilization, and the diversity in the definition of migrant status hampers cross-national comparisons and calls for an urgent establishment of registries, expansion of the existing registry information, and adoption of a common, generally acceptable definition and identification method of migrants across the EU.
Our effort, directed towards SPARQL query information retrieval, translates the existing Registry information to a Semantic Web technology standard to enhance its potential for re-use.
Starting from completely simulated data rather than making alterations to existing registry data allows a true assessment of the impact of the various errors that are introduced and ensures that there is an appropriate comparison to the 'perfect' cancer registry.
Therefore, there is an urgent need to establish healthcare utilization registries, to expand existing registry information, and to adopt common, generally acceptable definitions of, and methods for identifying migrants in registries across the EU.
Thus, the performance of different dialysis methods in a real-world clinical setting is poorly understood due to limitations in existing registry data.
An additional $20 million or so annual federal dispersal that has traditionally gone to the National Marrow Donor Program to oversee its existing registry is also uncertain.
What is more, existing registry schemes like America's Toxics Release Inventory, which forces companies to disclose details of their use of chemicals, achieve environmental goals not through red tape but through the "power of sunshine": the fear of appearing at the top of the list of polluters encourages firms to clean up their act.
This impedes valid comparisons of healthcare utilization between migrants and the indigenous population across Europe based on existing registry data.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com