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The follow-up survey was administered 12 months after the initial questionnaire in LSIA 3 and six months after the initial questionnaire in CSAM.
The majority (62%) responded after the initial questionnaire, some practices requiring reminders (34%).
After the initial questionnaire, which solicited suggestions for first aid actions, three rounds of questionnaires followed.
To maximise response to the survey, reminders were sent to non-responders 2 and 4 weeks after the initial questionnaire.
82 In the fifth step, the instrument will be administered to the same children 2 weeks after the initial questionnaire for assessment of test-retest reliability.
A link to the post-intervention questionnaires will be emailed to participants a week and then one month after the initial questionnaire.
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This was calculated at least 6 weeks after sending the initial questionnaire, to allow for late responders.
Four weeks after the initial questionnaires were mailed, non-respondents were again sent reminders, including another copy of the questionnaire.
Three months after they returned the initial questionnaire, women were posted a second questionnaire and reply-paid envelope.
The retest was submitted on average 17 days (SD 7.7; range 1 28) after submission of the initial questionnaire.
Participants were readministered the PedsQL™ Brain Tumor Module between 7 and 28 days (median = 9.5) after completion of the initial questionnaire.
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