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Data sources for patient registries range from clinic-based through administrative data collection and often there is capture of patient demographic and/or medical data.
Their research identified several discrepancies related to administrative data collection (Zeng et al. 2016, p. 1); for example, a significant anomaly occurred in 2008 when more than 20% of DCRP data was missing in the cause of death field for that year (Zeng et al. 2016).
HK planned the study and organized clinical and administrative data collection.
The latency of administrative data collection is no more than 14 days.
It is possible that it is largely based on a generalisation of the shortcomings of the administrative data collection.
The data come from routine administrative data collection processes, so the results represent a census of clients.
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Standardising the process for collecting demographic data in administrative data collections can be difficult if data collection is part of the routine activity of an organisation and that activity itself varies in context between different operational centres.
For example, demographic data of interest to researchers, but peripheral to the direct needs of the agency providing the service, may not always be rigorously pursued and carefully collected when included in administrative data collections.
For most administrative data collections, self-identification only is used to collect information on Indigenous status.
The WADLS uses highly accurate computerised probabilistic matching with clerical review to create linkages between administrative data collections across a range of Western Australian government departments and services (Holman et al., 1999).
Further efforts to improve ascertainment of Aboriginal status in health and administrative data collections are needed.
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