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Activity will be collected for 6 months.
Health service activity will be collected from responses to the CSRI incorporated into the final patient questionnaire.
HP Activity will be collected on a standardized worksheet completed after every participant contact (by phone and in-person).
For the total denominator population, invited to take part at baseline, anonymised clinical data with patient diagnostic information, prescribed drugs, blood tests and investigations, referrals and linked healthcare activity will be collected.
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Resource use associated with the intervention activities will be collected from primary schools for cost analysis.
Data regarding space-time activities will be collected from each subject in 3 waves, one year apart, using a repeated measures design.
Data regarding space-time activities will be collected via a GPS tracking kit for a period of 4 weeks in 3 waves (one year apart) with the same participants (using a repeated measures design).
Activity data will be collected using accelerometers and portable GPS data recorders.
Data about impairments and activity limitations will be collected from therapists' routine observations of the child (e.g. standardised assessments, clinical observations) at the initial assessment.
In addition, three hundred pulmonary fibrosis patients who do not use daytime supplemental oxygen will be recruited to participate in a longitudinal, pre-/post study in which patient-reported outcome (PRO) and activity data will be collected at baseline, immediately before daytime supplemental oxygen is initiated, and then once and again 9 12 months later.
Baseline neurophysiological activity for subjects will be collected in study 1 using functional magnetic resonance imaging (fMRI).
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