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The rapid assessment enabled us to design an appropriate and locally acceptable consent process for genetic research which had the potential to aggravate stigmatization experienced by patients.
Our review suggests that there are two important issues related to how ethically acceptable consent can be elicited in research practice beyond the focus of the theoretical literature on justifications of broader or narrower approaches to consent.
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Despite clarifications that no data linkage organization would be involved, some participants insisted that such research would be acceptable without consent only if a trustworthy data linkage organization were involved.
Almost all recalled and understood it, but those who found it acceptable tended to consent to randomization and those who could not accept it tended to refuse to participate.
We argue that although, in principle, medical research with human subjects is only acceptable after informed consent is obtained European and national law should allow that under certain circumstances and safeguards the informed consent requirement is put aside to avoid that research in the field of child abuse will be (come) impossible.
Information sheets were translated into local languages and signed (thumb print acceptable) and informed consent obtained.
The committee found it acceptable that informed consent was not collected.
However, ambiguity about how to make deferred consent acceptable to parents, children and practitioners remains.
In the Netherlands, UAT has not been felt to be acceptable without informed consent, initially verbal and more recently written.
It seems appropriate "to tune different levels of regulatory stringency (including regulations on acceptable types of consent) to different types of biological materials according to the interests of the donors involved".
Study participants cited reasons for approving the hypothetical PCST consistent with those in the literature, such as methodological need, adequate informed consent, acceptable risk benefit ratio, and societal benefit outweighing the risks.
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Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.

Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com