If they answer Worse or Better, they will be asked to indicate how much it is worse or better using one of the following markers: A tiny bit - almost the same; A little bit; Somewhat; Moderately; Quite a bit, A great deal or A very great deal.
The prevalence of each symptom is answered by yes/no: frequency on a four-point scale - rarely, occasionally, frequently or almost constantly; severity on a four-point scale - slight, moderate, severe, or very severe; and distress on a five-point scale - not at all, a little bit, somewhat, quite a bit or very much [ 26].
Each item of QLICD-CHD is rated in a five-level Likert scoring system, namely, not at all, a little bit, somewhat, quite a bit, and very much.
These are rated on a five-point Likert scale (i.e. "Not at all", "A little bit", "Somewhat", "Quite a bit", "Very much").
(select one response) Not at all A little bit Somewhat Quite a bit Very much SIQ SLE Impact Questionnaire, SSD SLE Symptom Severity DiaryThe actual questionnaire uses some bolding and underlining.
(select one response) Not at all A little bit Somewhat Quite a bit Very much In the past 7 days, how much did lupus impact your ability to get together with friends?
(select one response) Not at all A little bit Somewhat Quite a bit Very much In the past 7 days, how much did lupus impact your ability to feel rested enough to get out of bed in the morning?
(select one response) Not at all A little bit Somewhat Quite a bit Very much In the past 7 days, how much did lupus impact your ability to walk a short distance (approximately one block)?
(select one response) Not at all A little bit Somewhat Quite a bit Very much In the past 7 days, how much did lupus impact your ability to participate in leisure activities or hobbies that require you to leave your house (such as going to a park, going shopping, going to a restaurant, or going to the movies)?
It assesses HRQOL across five subscales (physical well-being, PWB; social well-being, SWB; emotional well-being, EWB; functional well-being, FWB; and colorectal cancer subscale, CCS) each with five response options ("not at all", "a little bit", "somewhat", "quite a bit", and "very much").
Each of the 17 items is rated on a scale from 0 to 4: not at all, a little bit, somewhat, very much, and extremely; with higher scores corresponding to greater distress the full- scale score thus ranges from 0 to 68.
