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Core data elements which must be collected to support effective surveillance include recording of catheter indication, catheter insertion and removal dates, urine culture results, and monitoring of bacteremia.
Core data elements, such as CD4 count, were missing for many patients, and data about adverse events and causes of death, which are critical to assessing the risks of combined ART and TB treatment, were not collected.
Based on Health Canada's Functional Standards and Minimum (Core) Data Sets for a National Immunization Registry Network[ 6] and modified for the purposes of this evaluation, core data elements included: name, sex, date of birth, postal code, unique identifier (e.g. health card number), vaccine lot number, date of vaccination, anatomical site of vaccination, and dose number.
Fig. 1 Utstein core data elements for CPR.
The list of core data elements, the models, and the dictionaries are available on our wiki at: http://ibiomes.chpc.utah.edu/mediawiki/.edu/mediawiki/
The identified core data elements were organized into a logical model to guide the design of new databases and application programming interfaces.
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The BOLD database currently host specimens records for which essentially, seven data elements are listed: Species name Voucher data Collection record Identifier of the specimen COI sequence of at least 500 bp PCR primers used to generate the amplicon Trace files The core data element in BOLD is a biphasic record consisting of both a "specimen page" and a "sequence page" (Figure 1).
Strategies to achieve a coordinated network could range from providing guidance on laboratory methodology to a common core data element which could be collected on all case patients enrolled in the various studies (e.g., similar to what is done with FoodNet reporting sites) to run global and longitudinal analyses.
These registries share a common structure, with an inner core of common data elements (CDE) that facilitate data analysis.
The purpose of the project is to develop a core set of data elements for annotating mesothelioma specimens, following standards established by the CAP checklist, ADASP cancer protocols, and the NAACCR elements.
We supplemented the questionnaire data with register information on seven core administrative health data elements: use of general practice, hospitalizations, outpatient treatments, psychiatric hospital contacts, drug prescriptions, cause and date of death, and information on personal characteristics 14 (Table 2).
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