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All registries with patient identification information were handled in a confidential manner and in accordance with the Spanish Law 15/1999 on the Protection of Personal Character Data.
All registries have national coverage.
All registries have ethical approval appropriate to their national and local ethics guidelines.
All registries are members of the North American Association of Central Cancer Registries NAACCRR).
All registries could be linked by the women's unique civil registration number (CRN).
All registries provide annual reports, both on a national basis and for the individual hospitals.
All registries have national coverage except for Sistema Informativo Emergenza Sanitaria (Italy) which only covers three-four regions.
All registries were assessed by at least 2 data analysts, with any noted discrepancies discussed and resolved.
All registries have baseline and 12- and 24-month follow-up assessments, except for NORspine and N²QOD (with only a 12-month follow-up).
All registries were in accordance with the institutional ethics committee of each participating centre, and all patients gave informed written consent for the procedures.
People of Asian descent are severely under-represented in all registries, and there is simply no public registry in Vietnam.
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